Utah Fetal Alcohol Spectrum Disorder Advocacy Group (Utah FASD Advocacy Group) was founded in on May 9, 2018 by Julie Winterton. Julie and her family adopted a two-year-old boy from Florida in 2010. At two years of age, their sweet little boy was medically fragile, deemed failure to thrive as an infant. By the age of 5, all known medical complications had miraculously resolved and the family believed he would continue to grow and have a normal life. However, new issues began to arise and Julie scrambled to find answers. At the time, there was very little information about Fetal Alcohol Spectrum Disorder in the United States.
The family received an FASD diagnosis just before moving to Utah. As complications related to FASD began mounting, Julie turned to the community and medical profession to find solutions. What she found, instead, were other parents with the same questions and no forthcoming answers. Like herself, these parents felt isolated and frustrated at the lack of information or resources, not just in Utah but across the United States.
In desperation, Julie started a Facebook group for parents of FASD children. Her hope was to create a community where members could support each other, share resources they found, lean on each other on bad days, share success stories on good ones, navigate the education system, and advocate for their children as a group.
In the fall of 2021, Julie passed the torch to Lindsay Goeckeritz, who currently maintains and moderates the Facebook group, while also greatly benefitting from the information shared by the families there.